Migraine World Summit 2019: March 20th – 28th

11 Jan
*Edited on February 2nd, 2019 to include the summit dates.

I am delighted to have been chosen as a volunteer for the Migraine World Summit – an annual live event which will be held on March 20th – 28th, 2019. It is available online and free.

As part of my role, I will be a Social Media Manager for LinkedIn and Facebook. Our mission is simple – to reduce the global burden of Migraine. By giving access to many of the world’s top experts, information is shared that can be discussed with the patient’s healthcare professionals to improve individual’s situations for the better.

The Migraine World Summit provides an opportunity to improve patients’ and caregivers’ understanding of Migraine and Headache disorders, by providing access to 30+ leading migraine experts, doctors and specialists from around the world.

A very close friend was diagnosed with New Daily Persistent Headache (NDPH) with Migraine Subtype a few years ago. Ever since then I have been so passionate about spreading awareness about chronic illnesses, as this is the only way to create a more accepting, understanding world with medical and social validation for those who suffer.

Migraine, is a genetic Neurological condition, like epilepsy. Headache may be the most common or well known symptom of Migraine, however it is a complex brain disorder with many possible symptoms. Some patients can have a Migraine with no headache. What many people are not aware of is that there are numerous types of headache and Migraine disorders. The International Headache Society (HIS) classifies the various types of migraines and headaches using strict diagnostic criteria.

The majority of Chronic Pain conditions and diseases are often called “invisible illnesses” as outwardly a person can look “normal” but be in excruciating pain. Unfortunately, it’s very easy for invisible illnesses to be viewed upon differently or not given the level of appreciation it deserves, but if you think about it, the majority of illnesses are “invisible” – Lupus, Ehlers-Danlos syndromes (EDS), Cancer, Rheumatoid arthritis (RA), Lyme Disease, Heart Disease, Migraine, Chronic Fatigue Syndrome and Sjogren’s Disease, to name a few. Unfortunately, there is no instruction manual for living a life with chronic/invisible illness and for facing the limitations and challenges caused by it.

For those who are fortunate to live life without an invisible illness, it can be difficult to understand and relate to someone who has been diagnosed. We have all had colds, flues, aches and pains. Our options to fix our illness might be to take anti-inflammatories, a soothing bath, and cold medications, even try to simply get some rest. No one judges us for that and many even empathise for the few days we feel under the weather. Thankfully, most of us are back on our feet and moving on with our lives in no time.

But imagine if that cold or flu never went away? What if the pain and fatigue stayed around or even got worse? What would you do then? Imagine finding out that what you have is chronic, had no known cure, and that it could potentially be part of your life forever. Now, envision trying to explain this new painful reality to your family, friends, and co-workers in a way that they would understand when at times, you may look perfectly fine from the outside.

Migraines are largely misunderstood by those who don’t suffer from them. Many people believe if you just take some pills, it’ll be all better. They don’t understand the mental, physical, and emotional toll it takes. This is the reason I am delighted to be part of something so big as the Migraine World Summit – to help spread awareness and let people know, it’s “not just a headache!”

If you or anyone you know suffers from Migraine/headaches, sign up for this free, unmissable event. Spreading awareness about invisible illnesses, such as Migraine, is the only way to create a more accepting, understanding world with medical and social validation for those who suffer.  Please help spread the word by participating in our online community, see the below links!

Follow us on Facebook, Twitter, Instagram and LinkedIn.

The 2019 schedule will be released shorty, but in the meantime, take a look at the speakers from 2018 here.

You can also read the news release here.

7 Responses to “Migraine World Summit 2019: March 20th – 28th”

  1. Jennifer May January 12, 2019 at 11:00 AM #

    Really well written post Eimear, looking forward to tuning in to the event!

    • mccarthyeimear January 14, 2019 at 9:06 AM #

      Thanks Jenny! I will be posting the schedule shortly – some great speakers!

  2. gizzylaw January 14, 2019 at 3:42 PM #

    I just saw this post this morning and have joined. The first interview that I pulled up has more information than I can process at one time. SOMEONE WHO KNOWS THAT MIGRAINES MORPH!!!!!! I was diagnosed at the age of 4. I am approaching 70. Things that my doctors could not explain are being explained. I cannot THANK YOU enough!

    • mccarthyeimear January 14, 2019 at 3:48 PM #

      Hello, I am glad to hear you have signed up for the Summit. The 2019 schedule is not live yet – it will be posted here and on the website and you can see which topics/speakers you would like to watch. I am sorry to hear you were diagnosed with migraine at the age of 4 – that is very hard. Thankfully doctors are becoming more understanding and it is being researched more now, so here is hoping we can get more results. I hope you enjoy the Summit – it is due to begin in March/April 2019.

      • gizzylaw January 14, 2019 at 6:26 PM #

        I realized ( a bit late) that the interviewee that I watched was from 2018! Very informative and supportive. Hard to find doctors like that!

  3. gizzylaw January 14, 2019 at 4:14 PM #

    Reblogged this on Talkin' to Myself and commented:
    For all the migraine sufferers out there. This is a great place to educate ourselves and others! If you know migraine sufferers, pass this on to them.

    • mccarthyeimear January 14, 2019 at 4:18 PM #

      Thank you so much for re-blogging this! Great to see people wanting to spread awareness about Migraines.

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